Thursday, November 6, 2014

It's November now...

Well, It's another month.  I wanted to post more frequently than that.  I don't know how all these moms with little kids post on their blogs so frequently.  I could probably post a little more, but I fall asleep at the computer quite frequently, which makes it difficult to type up a blog post.  Since I took a long nap this morning during my IVIG infusion, I feel pretty awake right now, so it's a good time to post.  Plus, I can't really do much during my infusions because when I do, I get a headache and my BP goes up.  It kinda sucks.  It drives me crazy to have to lay in bed for 2 days and have someone do everything for me.  I'm way to independent for this.  It took me about 6 months total before I really let my home nurse start doing a lot for me and then it wasn't until I got my second nurse that I started to give in.  My 1st nurse really didn't try to do much for me.  My second nurse really had to start insisting that I allow her to do things for me.  She wore me down though.  Now she does everything for me for the 2 days I get my infusion and we have become very good friends.

Sleeping for me has been really off lately.  I never sleep longer than 2 hours at a time at night before I wake up to either go to the bathroom, or because I am in pain, or because of muscle spasms.  I posted about that in detail in my last post, so I won't go into that any more, but to say that I had my consult with the specialist.  She is concerned I may have central sleep apnea from my MS.  I had a sleep study last week.  I'm still waiting on the results of the study.  It wasn't as bad as I thought it would be.  I didn't think I was going to be able to sleep with all the stuff all over me, but I was so tired that I fell asleep as soon as she left the room.  I'm still waiting on the results though.  It's been a week as of today so I hope to get them soon.  If there is any apnea, then I have to get another study done with the machine on to get the settings correct.  I'm hoping there is actually something they found that can be easily fixed.  Nothing else I have can be fixed.  Maybe this can be.  I'm just not confident that it can be helped.  I guess I've become cynical.

Wedding preparations are coming along.  I can't believe the wedding is in only 2 months now.  Rachael is starting to get really stressed out.  School is a lot busier this semester.  Tapestry didn't give her any classes this semester, so she had to get a job at Joann and they don't pay as well, so she has to work three times as many hours to make as much money and doesn't get off until 10pm 3 nights a week.  On top of that, she is planning a wedding.  Her photographer fell through the day before their engagement photo shoot, which pushed back their engagement photos getting done, which meant they can't get their engagement photos on the back on their wedding announcements since they need to get those ordered ASAP so they can get them mailed out by the end of the month. Today, I created an alternate back for their invitations so they can get them ordered.   Everything else seems to be going ok though.  Once they actually get their engagement photos done, I'll post a few photos from their engagement photos.

This Sunday is the primary program.  We have had 3 week of practice and the kids sounded pretty good last week.  I'll post on Sunday afternoon and let everyone know how it went.