The last 3 weeks have been full of adjustments for me. I posted all about my flare during my last post. I really thought things would be much better now. Usually, my function has more than 50% returned by the time I finish the oral steroids. This time, nothing. My right leg has been paralyzed for almost 3 weeks now. My whole life has changed in the last 3 weeks. I can't do things the same way I used to. I have to be careful about where I park or I can't get back into my van because there isn't enough room for the wheel chair ramp. I can't go to the grocery store by myself. I can't go to the fabric store by myself. That is the hard one for me. I love going to the fabric store and picking out the fabric for my next project and getting all the notions. Joann's, the fabric store I visit most, is hard for me to get around at all. It's a small, cramped store and my wheel chair doesn't even fit down all the isles. I have to take one of my kids with me. Rachael likes to go, but Andrew just complains and Jeremy isn't big enough to be much help. I can't go over to friends house very easily because I can't always get into their house. I can't just run into 7-11 for a drink. I've been really trying to just take things one day at a time. I've been trying to do as much as I can to keep some of my independence. I know when my mother in law had to go into a wheel chair, she had a hard time too. She and I are both very independent people.
Tonight, I just about had a total break down. I usually use the walker to get from the car to the house and just drag my leg. This evening, I had a few bags of groceries plus my dinner and no one else was home, so I thought I would take the wheel chair in so I could get everything in. Big mistake. I picked up a new wheel chair tonight, and it doesn't "off road" as well as the one I've been borrowing. Trying to get up on the side walk, I got stuck. The front wheel was against the side walk side ways and the power wheel was off the ground. I tried to stand up and pull it up, but it didn't work. I called every person I could think of that lived anywhere close to me. I don't know a lot of my neighbors very well. We mostly just say 'HI" in passing. I don't have any of their phone numbers except my next door neighbor on the right and she was pulling out as I pulled in. No one I called was home. I had to walk and drag my leg over to the neighbors on the left. No one answered at first. I got all the way back home and they came out-they had been taking a nap. He was able to get the wheel chair unstuck and back into the van. One of my closest friends, and the person I called first, called me back as I was coming into the house. I broke down and cried hysterically. I still start to cry every time I think of it. Just that small ordeal totally exhausted me. My leg is in spasms from the extra activity. I just hate this. I have known since I was first diagnosed with MS that I had a higher chance of ending up in a wheel chair. I just didn't think it would happen so soon. I thought I would have 10 or 12 years before a wheel chair was necessary and I thought it would be a little more gradual. I'm still holding onto a little bit of hope that I will get some function back. It may just be denial though.
I have a few new jobs lined up. I"m excited about them. I've been asked by an old high school friend to make a few ruck sack style back packs. I made a prototype for myself to make sure I had the pattern correct (I made the pattern myself from a photo). Now, I am working on hers. It's a nice, big back pack and carries a ton of stuff. There are also lots of pockets. Jeremy's occupational therapist wants one too now. I am also going to be making a quilt for one of the other VIR moms. I may let the things in my Etsy store expire and just make things custom for friends and family who request things.
Jeremy has decided he wants to learn to sew. He wants to make a book bag for his cousin. We did some embroidery together on it and now we have started sewing it together. I'm going to be doing some sewing with my cub scouts next year when they are Webelos. This will be good practice for me to teach boys how to sew. I hope the other boys are as excited as he is.