I will warn you THIS POST CONTAINS MANY TMI STATEMENTS SO READ AT YOUR OWN RISK
I know that is not how the saying goes, but I feel as though I took more than steps forward for my little step back today. My sleep was really off last night despite Dr. Latorre having me on scheduled sleeping pill. I've never taken a sleeping pill regularly, or even as needed. I've taken Ambien once and that knocked me on my backside. I got 1 Ambien tab before I left the hospital after going in for preterm labor and getting a bunch of shots to stop it (the shots make you very jittery). I don't remember getting home, and then I slept for 22 hours straight except for stumbling to the bathroom every few hours (I was pregnant) Because of that experience, I shy away from sleeping pills. However, Dr Latorre (my rehab Dr in case you don't remember) wants to make sure I am getting adequate sleep so he has ordered a sleeping pill to be given every night. Last night, not even that was enough because I kept waking up to pee When you can't walk to the bathroom and you have to use a catheter to pee, this can take quite a while and can result in being wide awake when you are done. Despite being careful not to drink too much after 8pm, I had to pee 3 times last night. Sometimes it was a lot and sometimes it wasn't. Then I started itching a lot which is one of my annoying MS symptoms so I put lotion on the effected areas, benadryl cream and finally just asked for some oral benadryl. I had 3 bouts of sleep that were 2-3 hours each. I was not ready to wake up.
Now this am, when the nurse took my am vitals, my BP was 100/56. For those of you who are not medical, this is a low BP. It I was someone who was walking, it could have made me faint when I stood up out of bed. Since I was moving to the wheel chair, that wasn't a problem. We did hold my diuretic which keeps my legs from swelling because I am in the wheelchair all the time. I had some dizziness during PT a short time later and my heart rate was pretty fast, like 120. My BP was good after a few hours of drinking a lot of fluids. My HR has been up most of the day, higher than my norm of 95-105. I kept having to pee really frequently though but only had small amounts. Usually I can only tell if my bladder is full when I have more than 750cc of urine in there but this am it was 200-300cc and I felt like I was going to burst. A urine culture has been sent but the urninalysis was normal so we will just have to see how the culture comes out.
While all of this was happening this morning, I started having some muscle spasms again. I would have been perfectly happy if they never came back and they took my pump out. This is one of the biggest reasons all my doctors and I were sure I had a UTI. No change in dose on my pump today. We will see what happens with my spasms today. I did get the OK to do my bed to chair transfers alone today, but I can't go to the bathroom by myself.
I my speech and cognitive therapy today, I was given the game Luminosity on the tablet as my homework assignment. It was challenging but I was surprised to find out when it scored me that I did better than 20-39% of the people who are my age
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